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X-WR-CALNAME:Down Syndrome Parents Group of Western New York - DSPG of WNY
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240117T183000
DTEND;TZID=America/New_York:20240117T200000
DTSTAMP:20260410T061057
CREATED:20240109T035853Z
LAST-MODIFIED:20240109T040942Z
UID:421425-1705516200-1705521600@dspgwny.org
SUMMARY:Annual Meeting and Advocacy Workshop
DESCRIPTION:Annual Meeting and Advocacy Workshop\n \nOur Annual Meeting will be held on Wednesday\, January 17\, 2024 from 6:30-8:00pm at Bornhava which is located at 25 Chateau Terrace in Amherst. This will be a joint meeting with members of the DSPG and parents of children who attend Bornhava. \nAgenda: \n\nGuest Speaker: Vickie Rubin\, M.S Ed. is a parent of adult with special needs and an award-winning author of the book Raising Jess: A Story of Hope. Vickie will present on “Skills for Effective Advocacy.” Before writing her book\, Vickie was the director of the Early Childhood Direction Center (ECDC) for Oishei Children’s Hospital\, Kaleida Health.\nGeneral Meeting: Annual report on the state of the DSPG followed by vote on Board elections.\n\nPlease RSVP by 1/12  at https://form.jotform.com/dspgwny/jan24
URL:https://dspgwny.org/event/annual-meeting-and-advocacy-workshop/
LOCATION:Bornhava\, 25 Chateau Terrace\, Amherst\, NY\, 14226\, United States
CATEGORIES:Annual Event,Guest Speaker
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230225T080000
DTEND;TZID=America/New_York:20230225T153000
DTSTAMP:20260410T061057
CREATED:20221215T030341Z
LAST-MODIFIED:20221218T160401Z
UID:420600-1677312000-1677339000@dspgwny.org
SUMMARY:Feb 25\, 2023 Conference on Sexuality
DESCRIPTION:THE DOWN SYNDROME PARENTS GROUP OF WNY PRESENTS \n\n2-day Self-advocate & Parent Conference\nfeaturing Terri Couwenhoven MS\nsexuality educator • author • advocate • parent\n\nFriday\, February 24th & Saturday\, February 25 @ Union Fire Company\n1845 Union Rd\, West Seneca\, NY 14224\n\n\nTo Register go to https://form.jotform.com/dspgwny/TC2023\n\n  \nTerri Couwenhoven MS\, CSE6 is a well-known certified sex educator and author\, specializing in the design and implementation of sexuality programs and resources for people with intellectual and/or developmental disabilities\, their parents\, and the professionals who support them. \n___________________________________________ \nFriday\, February 24th\n5:30-9 PM PARENT / SELF-ADVOCATE TRAINING SESSIONS \nSexual Learning: Changing the Scripts (Parent) / Dating 101 (Self-advocate) \n$30 REGISTRATION FEE – parent or caregiver must accompany self-advocates \nlight dinner • Q&A • discussion \nNOT A DROP-OFF EVENT \nPARENT TRAINING • 6-7 PM \n\nSexual Learning:\nChanging the Scripts\n\nParent workshop including a breakdown of the Dating 101 \nSelf-advocate training session. Discussion and light dinner will be \navailable to parents afterward during the self-advocate workshop. \nSELF-ADVOCATE TRAINING • 7-9 PM \n\nDating 101\n\nThis co-ed workshop is for designed for high school-aged teens \nor young adults with intellectual disabilities who are interested \nin dating. Self-advocates will start with a light dinner available \nduring parent workshop. \n___________________________________________ \nSaturday\, February 25th\n8 AM-3:30 PM PARENT TRAINING SESSIONS \nPuberty / Boundaries / Dating (Q&A after each session) \n$20 REGISTRATION FEE FOR EACH SESSION or $45 FULL DAY REGISTRATION \n\nlunch available for pre-order purchase at registration\nLunch hour will include an introduction to local resources\n\nPARENT TRAINING • 8:30 AM-10 AM \n\nTop 5 Issues & Concerns During Puberty\n\nPARENT TRAINING • 10:30 AM-12 PM \n\nDon’t Cross the Line!\nNavigating Boundary Confusion in People with IDD\n\nPARENT TRAINING • 1:00 PM-3:30 PM \n\nI Want to Date! Supporting Healthy Dating Relationships\n\n\n\nTo Register go to https://form.jotform.com/dspgwny/TC2023\n 
URL:https://dspgwny.org/event/feb-25-2023-conference-on-sexuality/
LOCATION:Union Fire Company\, 1845 Union Road\, West Seneca\, 14224\, United States
CATEGORIES:Conferences,Guest Speaker,Seminar/Educational
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230224T173000
DTEND;TZID=America/New_York:20230224T210000
DTSTAMP:20260410T061057
CREATED:20221210T172355Z
LAST-MODIFIED:20221218T160054Z
UID:420705-1677259800-1677272400@dspgwny.org
SUMMARY:Feb 24\, 2023 Conference on Sexuality
DESCRIPTION:THE DOWN SYNDROME PARENTS GROUP OF WNY PRESENTS \n2-day Self-advocate & Parent Conference\nfeaturing Terri Couwenhoven MS\nsexuality educator • author • advocate • parent\n \nFriday\, February 24th & Saturday\, February 25 @ Union Fire Company\n1845 Union Rd\, West Seneca\, NY 14224\n \nTo Register go to https://form.jotform.com/dspgwny/TC2023\n  \nTerri Couwenhoven MS\, CSE6 is a well-known certified sex educator and author\, specializing in the design and implementation of sexuality programs and resources for people with intellectual and/or developmental disabilities\, their parents\, and the professionals who support them. \n___________________________________________ \nFriday\, February 24th\n5:30-9 PM PARENT / SELF-ADVOCATE TRAINING SESSIONS \nSexual Learning: Changing the Scripts (Parent) / Dating 101 (Self-advocate) \n$30 REGISTRATION FEE – parent or caregiver must accompany self-advocates \nlight dinner • Q&A • discussion \nNOT A DROP-OFF EVENT \nPARENT TRAINING • 6-7 PM \n\nSexual Learning:\nChanging the Scripts\n\nParent workshop including a breakdown of the Dating 101 \nSelf-advocate training session. Discussion and light dinner will be \navailable to parents afterward during the self-advocate workshop. \nSELF-ADVOCATE TRAINING • 7-9 PM \n\nDating 101\n\nThis co-ed workshop is for designed for high school-aged teens \nor young adults with intellectual disabilities who are interested \nin dating. Self-advocates will start with a light dinner available \nduring parent workshop. \n___________________________________________ \nSaturday\, February 25th\n8 AM-3:30 PM PARENT TRAINING SESSIONS \nPuberty / Boundaries / Dating (Q&A after each session) \n$20 REGISTRATION FEE FOR EACH SESSION or $45 FULL DAY REGISTRATION \n\nlunch available for pre-order purchase at registration\nLunch hour will include an introduction to local resources\n\nPARENT TRAINING • 8:30 AM-10 AM \n\nTop 5 Issues & Concerns During Puberty\n\nPARENT TRAINING • 10:30 AM-12 PM \n\nDon’t Cross the Line!\nNavigating Boundary Confusion in People with IDD\n\nPARENT TRAINING • 1:00 PM-3:30 PM \n\nI Want to Date! Supporting Healthy Dating Relationships\n\n  \nTo Register go to https://form.jotform.com/dspgwny/TC2023\n 
URL:https://dspgwny.org/event/feb-24-2023-conference-on-sexuality-duplicate-420600/
LOCATION:Union Fire Company\, 1845 Union Road\, West Seneca\, 14224\, United States
CATEGORIES:Conferences,Guest Speaker,Seminar/Educational
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230118T190000
DTEND;TZID=America/New_York:20230118T210000
DTSTAMP:20260410T061057
CREATED:20221218T155521Z
LAST-MODIFIED:20221218T161428Z
UID:420594-1674068400-1674075600@dspgwny.org
SUMMARY:Annual Meeting
DESCRIPTION:Our Annual Meeting will be held on Wednesday\, January 18\, 2023 at 7pm at Daemen University\, Room 105 in the Athletic and Wellness Center\, 4433 Main Street across Main Street from the main Daemen campus.  We will have a report from our treasurer\, hold Board elections and hear from Kristi Moscato\, Community Relations Manager at Person Centered Services on “What is Self Direction?” \nTo register go to https://form.jotform.com/dspgwny/Jan2023 \nPARKING: If you plan on attending please print out the parking pass below. A map of the parking area is also available (we will be in building K). The driveway to the parking area is off Amherstdale Street. When you enter the building from the parking lot\, the room is the first door on the left. Hope to see you there!
URL:https://dspgwny.org/event/annual-meeting/
LOCATION:Daemen University\, 4433 Main Street\, Amherst\, NY\, 14226\, United States
CATEGORIES:Guest Speaker,Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200128T190000
DTEND;TZID=America/New_York:20200128T210000
DTSTAMP:20260410T061057
CREATED:20200110T001622Z
LAST-MODIFIED:20200110T001718Z
UID:2119-1580238000-1580245200@dspgwny.org
SUMMARY:Informational Meeting on the Able Act & Financial Planning
DESCRIPTION:Bruce A. Goldstein will present on the topics of the ABLE Act and special needs trusts. Mr. Goldstein\, Special Counsel at Kenney Shelton Liptak Nowak LLP\, brings over forty years of experience to the field. He concentrates his practice in the areas of Special Education\, Special Needs\, Estate Planning\, Not-for-Profit Corporations\, and Health Law. \nThis Meeting will be held at Union Fire Company\, 1845 Union Rd\, West Seneca\, NY 14224 from 7:00-9:00pm.  Please park behind the building and use the back entrance. Use the link below to submit questions and to RSVP so we know how many to expect. https://form.jotform.com/dspgwny/JanMeeting
URL:https://dspgwny.org/event/informational-meeting-on-the-able-act-financial-planning/
LOCATION:Union Fire Company\, 1845 Union Road\, West Seneca\, 14224\, United States
CATEGORIES:Guest Speaker,Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190430T190000
DTEND;TZID=America/New_York:20190430T210000
DTSTAMP:20260410T061057
CREATED:20190210T150551Z
LAST-MODIFIED:20190210T150551Z
UID:2063-1556650800-1556658000@dspgwny.org
SUMMARY:April Meeting on Sexuality
DESCRIPTION:Join us at 7pm at the Museum of disAbility History where Kristi Moscato from Parent Network will share strategies for keeping our kids safe as well as when to speak up. When it comes to discussing sexuality\, there are words to encourage a more comfortable conversation. Parents and caregivers will learn the importance of early and ongoing discussions about sexuality. There will also be a discussion about appropriate social behaviors for young adults with disabilities.
URL:https://dspgwny.org/event/april-meeting-on-sexuality/
LOCATION:Museum of Disability History\, 3826 Main Street\, Buffalo\, NY\, 14226\, United States
CATEGORIES:Guest Speaker,Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190128T190000
DTEND;TZID=America/New_York:20190128T210000
DTSTAMP:20260410T061057
CREATED:20181212T163917Z
LAST-MODIFIED:20181212T163917Z
UID:2052-1548702000-1548709200@dspgwny.org
SUMMARY:January Meeting on Special Needs Financial Planning and the ABLE Act
DESCRIPTION:Join us for our first general meeting of the New Year\, Monday\, January 28\, 2019 at 7pm at the Museum of disAbility History\, 3826 Main St\, Buffalo\, New York 14226. at 7pm. Topics will include special needs planning\, trusts and wills. Also we’ll learn how the ABLE Act will be beneficial to our families. Click here to register https://form.jotform.com/dspgwny/Jan2019
URL:https://dspgwny.org/event/january-meeting-on-special-needs-financial-planning-and-the-able-act/
LOCATION:Museum of Disability History\, 3826 Main Street\, Buffalo\, NY\, 14226\, United States
CATEGORIES:Guest Speaker,Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20180111T190000
DTEND;TZID=America/New_York:20180111T210000
DTSTAMP:20260410T061057
CREATED:20171113T162941Z
LAST-MODIFIED:20171113T162941Z
UID:1305-1515697200-1515704400@dspgwny.org
SUMMARY:Special Needs Law Presentation
DESCRIPTION:On Thursday\, January 11\, 2018 DSPG member and Special Needs Lawyer\, Marcy Hagen\, will talk about special needs law at the Museum of Disability History\, 3826 Main St\, Buffalo\, NY 14226. She will give an overview on what school districts are obligated to provide\, how to best advocate for your child\, the due process complaint process and answer any questions you have. Click here to RSVP and submit your questions https://form.jotform.com/dspgwny/january2018.
URL:https://dspgwny.org/event/special-needs-law-presentation/
LOCATION:Museum of Disability History\, 3826 Main Street\, Buffalo\, NY\, 14226\, United States
CATEGORIES:Guest Speaker,Meeting,Seminar/Educational
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20160113T190000
DTEND;TZID=America/New_York:20160113T210000
DTSTAMP:20260410T061057
CREATED:20160109T033711Z
LAST-MODIFIED:20160109T033711Z
UID:1072-1452711600-1452718800@dspgwny.org
SUMMARY:DSPG Meeting - Transitions from EI/CPSE/CSE
DESCRIPTION:Join us Wednesday\, January 13 at 7pm in room M102 at Medaille College where Vicki Rubin from ECDC will speak on the transition process from Early Intervention to school age. \n** At 6:30pm\, prior to our meeting\, we invite you to bring any gently used materials your child has grown out of\, (books\, DVDs\, halloween costumes\, etc.)\, to share with another \nfamily. Please do not leave any unclaimed items behind. Hope to see you there!
URL:https://dspgwny.org/event/dspg-meeting-transitions-from-eicpsecse/
LOCATION:NY
CATEGORIES:Guest Speaker,Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20151104T190000
DTEND;TZID=America/New_York:20151104T210000
DTSTAMP:20260410T061057
CREATED:20151030T130828Z
LAST-MODIFIED:20151030T131346Z
UID:1063-1446663600-1446670800@dspgwny.org
SUMMARY:High School Diploma Options - November 4th\, 2015
DESCRIPTION:  \n  \nJoin us on Wednesday\, November 4th at 7 pm\, in M302 at Medaille College where we will have a presentation on high school diploma options. The new CDOS credential will be discussed as well as other traditional diploma options. \n 
URL:https://dspgwny.org/event/diploma-options-november-4th/
LOCATION:NY
CATEGORIES:Guest Speaker,Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150325T190000
DTEND;TZID=America/New_York:20150325T210000
DTSTAMP:20260410T061057
CREATED:20150317T203147Z
LAST-MODIFIED:20150317T203147Z
UID:980-1427310000-1427317200@dspgwny.org
SUMMARY:Open Forum of Health Discussion - March 25th
DESCRIPTION:Join us at 7:00pm in room M102 at Medaille College where we will discuss health issues that affect our loved ones. We have invited families that have visited the Down Syndrome Clinic at MassGeneral to share their experience. Dr. Brian Skotko is the Co-Director of the clinic and spoke about it at the conference last May. We will also have Joseph Mangio on hand for a brief discussion of the DDAWNY Family Committee. Bring your questions and be ready to share your knowledge.
URL:https://dspgwny.org/event/open-forum-of-health-discussion-march-25th/
LOCATION:M102\, Medaille College Medaille College\, 18 Agassiz Circle\, Buffalo\, NY\, 14214\, United States
CATEGORIES:Guest Speaker,Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20121114T190000
DTEND;TZID=America/New_York:20121114T200000
DTSTAMP:20260410T061057
CREATED:20121108T215414Z
LAST-MODIFIED:20130208T040325Z
UID:233-1352919600-1352923200@dspgwny.org
SUMMARY:Sleep Apnea/ENT Update
DESCRIPTION:Dr. Linda Brodsky\, pediatric ear\, nose and throat specialist and founder of Pediatric Ear\, Nose and Throat Associates\, will be speaking on Wednesday evening\, November 14\, at 7pm in M101 at Medaille College. Dr. Brodsky will be updating us on sleep apnea in individuals with Down syndrome and other relevant ear\, nose and throat issues. Note: This room is next to M102 where we usually meet. There will be a short question and answer period after Dr. Brodsky’s presentation. More information about Dr. Brodsky and PENTA can be found on her blog: thebrodskyblog.com.
URL:https://dspgwny.org/event/sleep-apneaent-update/
LOCATION:NY
CATEGORIES:Guest Speaker,Seminar/Educational
END:VEVENT
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